What Life Means Today

Some years ago, this blog began as a way to stay connected with family and friends while Rob and I embraced our new life in Costa Rica — it was actually called Live Love Travel Souls. I then became pregnant with Lola so I thought I’d blog about the healthcare system in Costa Rica and raising a baby in a foreign country. And then over a course of time, life changed drastically when Lola was diagnosed with infantile spasms (a rare form of epilepsy), cortical visual impairment and global developmental delays. The blog morphed into Say Hola Lola. When Lola began to have seizures, countless medical appointments, endless diagnostic testing, a daily regime of medication and therapies to help her get strong both physically and mentally, I scoured...
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Third Wedding and a Birthday

Hard to believe so much time has passed since my last blog post. It’s not that nothing has gone on — it’s simply that life has been too jammed packed with excitement to sit down and actually write about it. Wedding #3 Three years ago, Rob and I did what most couples only dream of doing…we had a “destination wedding” in Costa Rica. Although how lucky for us that we actually were living in Costa Rica when we decided to take that leap into blissful eternity. Our first ceremony was when we were legally married by a Costa Rican lawyer and then a few days later we said our vows publicly in a beautiful union amongst all of our family and friends. But when we moved back to...
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Just Living

Over the past couple of weeks, I have made a valiant effort to sit down and write a post. But each time, I had to think and think about what to write about. This is rare for me because as you all know…I always have something to say. This blog started out in Costa Rica. It was originally called “Live Love Travel Souls” and it was pre-marriage and pre-Lola. Rob and I thought we were going to be trekking around to various adventures and the blog would be a great way to share our newfound lives with our family and friends in the States. Then I became pregnant so I was prompted by Rob to write about my pregnancy in a foreign country. Then we got married so...
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The Neurogeneticist

“Amazing!” “Fantastic!” “Lucky!” These were among the promising words the neurogeneticist said to us on Friday as he discussed Lola’s undiagnosed condition. I remember asking Rob on Thursday (the night before the appointment) if he felt worried about what we’d find out. And ever so calmly, he said he didn’t feel worried at all and he just thought this was something that just happened to Lola. Oddly enough, I too, didn’t feel as worried as my normal worrying self would have usually felt. I just kept telling myself as long as it’s not terminal and as long as it’s not a degenerative disease than I can handle just about anything. And thankfully…oh thankfully…the doctor said just that “I don’t think she has a life threatening illness or some...
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Birthday Wishes for Lola

Hard to believe we’ll have a two year old this week as Lola’s birthday is on Friday, January 4th. I’ve received a lot of questions about what to get her and to be honest, the girl really doesn’t need anything. I’ve been trying to come up with ideas, but only one keeps coming to mind. While just a good birthday thought would do yet if you wish to do something, please consider donating to VIPS-Bloomington on Lola’s behalf. This may not seem like it benefits Lola, but in truth, it definitely does. If VIPS doesn’t get funding then Lola as well as other blind and visually impaired kids don’t get the vision services they so badly need. Lola will most likely be in VIPS for another year (she’ll...
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