Check back at the beginning of May 2024 for a new and improved site. We realized how important it was to keep the site going since it was an important touchstone for many (new) parents of children with NR2F1, BBSOAS (Bosch Boonstra Schaaf Optic Atrophy Syndrome), epilepsy, cortical visual impairment, and the broader cross-section of children in the special needs and visually impaired community. Looking forward to connecting with parents and caretakers again through this website and provide a way to connect across the global community. More to come soon!