Today’s Silence Comes With an Unfair Price

Something strange and wonderful is happening in my house right now. I’m sitting here sipping my coffee while trying to organize all of the thoughts in my head. I hear the whisper of the fan, I hear the rhythmic pattern of the washer and I can even hear the rumbling of my stomach telling me to go eat breakfast. What is missing this morning is the usual chaotic noise that is generally found in my home. There are no kids laughing or crying, the dogs aren’t barking because they are being attacked by Lola or Sebastian (OK – mostly Lola) and the TV isn’t displaying its normal morning show — Curious George. Instead I’m sitting here alone and in silence. I should say that I’m missing all of...
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What Life Means Today

Some years ago, this blog began as a way to stay connected with family and friends while Rob and I embraced our new life in Costa Rica — it was actually called Live Love Travel Souls. I then became pregnant with Lola so I thought I’d blog about the healthcare system in Costa Rica and raising a baby in a foreign country. And then over a course of time, life changed drastically when Lola was diagnosed with infantile spasms (a rare form of epilepsy), cortical visual impairment and global developmental delays. The blog morphed into Say Hola Lola. When Lola began to have seizures, countless medical appointments, endless diagnostic testing, a daily regime of medication and therapies to help her get strong both physically and mentally, I scoured...
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A Smashing Success!

On Sunday, May 18th, Visually Impaired Preschool Services of Indiana (VIPS) joined 20 other area nonprofits at the Walking for Dreams 5K in downtown Indianapolis. The underlying theme of the event is “to help others help themselves” and that’s exactly what VIPS did on Sunday. With 98 walkers from Indiana, Kentucky and Michigan, VIPS raised over $8800! These are staggering numbers given it was VIPS’ first year at the event. I am pleased to share that Team Lola raised over $2000 for VIPS on Sunday! We received countless donations from family members, friends and people who heard about Lola’s story and wanted to help. I probably annoyed most everyone on Facebook as social media is the easiest way to get the message out, but I kept reiterating how...
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Walking for Dreams – 2014

On Sunday, May 18th, Visually Impaired Preschool Services of Indiana will join 21 other Indiana non-profit organizations in the Walking for Dreams 5K Family & Pet Walk. Walking for Dreams started in 2004 to help local non-profit agencies that benefit children and families. The event is sponsored by the Sycamore Foundation whose mission is to help enhance area non-profits effectiveness throughout their communities. If you remember, we walked a couple of years ago for the Indiana Blind Children’s Foundation. I was impressed with the event and I loved the concept which is why I thought VIPS would be a perfect fit. It would help raise awareness that VIPS is here in Indiana which could mean more blind and visually impaired children would get the early intervention services they...
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Hi – We’re Here

I realize it has been a few weeks since my last blog post and my only explanation to that is I have a young infant who loves his mama and a little girl who has found a freedom like she never knew. I see these blogging mothers who raise families, some work, in pictures their houses look clean and tidy and yet they still find time to create these amazing blogs. I can’t quite figure out how they do it all. I thought I would have plenty of time to dedicate to this blog after I had Sebastian. Lola would be in school, Sebastian would be an infant and I would spend parts of my day listening to music and writing my little heart out. I find that...
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