Many of you often write in asking what you can do to help Lola…well here is your chance to really make a difference on Lola’s behalf. On Sunday, June 3rd, we are participating in the annual Walking for Dreams fundraiser. Walking for Dreams started in 2004 as a way to help local Indianapolis non-profit agencies. [...]
A Feeding Frenzy
While Lola’s skills seem to be blossoming on a daily basis, the one area that seems to be the most troublesome is in the self-feeding department. And naturally, have you ever tried to feed yourself with your eyes closed? I mean, we know Lola can see, but the low vision proves to be a challenge [...]
This morning Lola had a MRI at Riley Hospital for Children in Downtown Indianapolis in hopes to get clearer images so that an accurate diagnosis can be made. While the actual diagnosis doesn’t change much of anything in regards to her treatment and therapies, it is still necessary to know. Lola’s neurologist in Costa Rica [...]
A New Found Freedom
I underestimated this little girl. A few days ago, I decided to try and let Lola sit in the bathtub unassisted meaning without her bath chair and without my arms holding her up. I had crazy images of Lola falling backwards and cracking her head on the tub, but my girl is much stronger than [...]
Day 20 – May 17th, 2011 “Lola has now figured out how to take her pacifier out of her mouth with her hands, but then she desperately wants someone to put it back in. You’ll learn soon enough, my love. Today has been good. Lola has not had a seizure since yesterday which is a [...]
Find Us on Facebook
Popular Discussion Topics
Tags
baby birthday blog brain breastfeeding cortical visual impairment costa rica cute dad development family friends grandma happiness happy home hope husband indiana indianapolis Infantile Spasms labor lissencephaly lola love low vision michigan milestones mom mother motherhood neurologist Occupational Therapy pachygyria parenting partial lissencephaly physical therapy pregnancy seizures sleeping special needs swimming toddler vision west syndrome










