From the monthly archives: February 2012
Mimicking
By Meredith On February 24, 2012 · Leave a Comment · In Baby, Happiness, Love, Milestones, Parenting
After a long day of fussing and crying (thank you snot and teeth), Lola was finally happy after her shower tonight. Well of course she was…the girl was naked. But something remarkable and extremely noteworthy happened tonight…Lola began to mimic me! I would blow raspberries, Lola would look at me observantly, ponder my action and [...]
In All Honesty
By Meredith On February 24, 2012 · Leave a Comment · In Baby, Blog, Infantile Spasms, lissencephaly, Motherhood, pachygyria, Parenting, West Syndrome
Last night my mind wandered off to a place I hadn’t allowed in to go in a long time…I began to think about the far distant future for my Lola. Yesterday Rob, Lola and I went to the Developmental Disability building to fill out an application for a waiver in an effort to make sure [...]
A Visit, a Tear and a lot of Lessons
By Meredith On February 23, 2012 · Leave a Comment · In Baby, Family, Infantile Spasms, Motherhood, Parenting, Physical Therapy
On Saturday, we had the pleasure of having Rob’s mom come to visit for a couple of nights. While I know many people gasp at the thought of their mother-in-law coming to visit, I on the other hand welcome Kathy with wide open arms. I could go on and on about what an amazingly special [...]
“Normal” Never Sounded so Good
By Meredith On February 17, 2012 · Leave a Comment · In Baby, Infantile Spasms, lissencephaly, Milestones, Motherhood, Occupational Therapy, pachygyria, Parenting, Photos, Physical Therapy, Seizures, West Syndrome
Well first off we have BIG news to share…Lola’s EEG came back normal! Thankfully there were no signs of seizure activity which means that either the medicine is working or Lola is simply not having seizures. It is too soon to wean her off of the Trileptal as seizures could still do significant damage, but [...]
An EEG and an Afternoon
By Meredith On February 10, 2012 · Leave a Comment · In Baby, Infantile Spasms, lissencephaly, Motherhood, pachygyria, Parenting, Seizures, West Syndrome
This morning we were up bright and early to head down to Riley Children’s Hospital for Lola’s first EEG in the United States. I had been to two EEG’s with Lola in Costa Rica, so I was interested to see how the two locations would differ. Have you ever seen such a cute pilot before? [...]
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