From the monthly archives: January 2012
Our Week
By Meredith On January 29, 2012 · Leave a Comment · In Baby, Blog, lissencephaly, Milestones, Motherhood, pachygyria, Parenting, Physical Therapy
This past week has been a rough one for poor little Lola. I guess I should say it has been a rough week for both Lola and Rob. Lola’s first top tooth has finally made its appearance, but damn has it been painful for her. She has wanted nothing but to be near one of [...]
Yesterday I had a long lunch with an old friend. As he was holding Lola, I couldn’t help but notice how shaggy her hair was looking. I guess I was naive in thinking that Lola wouldn’t need a haircut until she was a couple years old, but seeing the long straggly pieces dangle down in [...]
Last Step with First Steps
By Meredith On January 21, 2012 · Leave a Comment · In Baby, Blog, Occupational Therapy, Parenting, Physical Therapy
Yesterday we had an in-home meeting with our service coordinator from First Steps. Ms. Davis came out to welcome Lola into the program, explain to us what to expect next and finally she wrote up a 90 day therapy plan that Lola’s therapists will try to adhere to. We were to come up with short [...]
I’m Feeling Title-less
By Meredith On January 21, 2012 · Leave a Comment · In Baby, Blog, Family, Infantile Spasms, lissencephaly, Motherhood, pachygyria, Parenting, West Syndrome
So often in this blog, Lola’s condition and progress is the main subject of the content. I happily provide this information as I think it is important not only for our family and friends to stay updated with her life, but I also think it is crucial for other families to see Lola’s life with [...]
Lola’s Birthday – Part Two
By Meredith On January 12, 2012 · Leave a Comment · In Baby, Family, Friends, Happiness, Milestones, Parenting, Photos
On Saturday, we threw Lola a First Birthday/Crafting Party. We wanted to do something fun, but different for Lola. Rather than relying solely on pictures and tales from her old Mom and Dad of how special her first birthday was, we thought having mementos made by those that love her would give Lola fun memories [...]
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