Yesterday I was hooked on the computer looking up everything related to cortical visual impairment (CVI). It was healthy googling as I was interested in learning more about the condition seeing that Lola has it herself. While most of the information I found stated that the vision impairment is only in the brain not in [...]
I thought it would be good to write about Lola just as a baby. Not as a baby with West Syndrome, not as a baby with cortical visual impairment, not as a baby with some delays. Just a baby. Food: Lola has turned into a ravenous beast when it comes to food. It is crazy [...]
Every month is like deja vu. Right before I start my period (I’m not too prideful to say yes – I do in fact have a period) I start getting emotional and quite sad about Lola’s condition. The other 20 some days I am without it, I feel fine. I’m up for the challenge. I [...]
Lola’s occupational therapy session with Melissa went great today. Melissa was over the top impressed with what changes she saw in Lola’s vision. She commented that not only was Lola focusing better, she was focusing for much longer periods of time. She wasn’t as easily distracted and she seemed genuinely interested in what she was [...]
Clearly you can see that mangoes aren’t quite in season making them a little tart. Once Lola got past the first few bites, she loved them. OK, OK – she semi-loved them.
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