From the monthly archives: August 2011
A Trip to the Ophthalmologist
By Meredith On August 30, 2011 · Leave a Comment · In Baby, Blog, Costa Rica, Infantile Spasms, Occupational Therapy, Parenting, West Syndrome
Yesterday I was hooked on the computer looking up everything related to cortical visual impairment (CVI). It was healthy googling as I was interested in learning more about the condition seeing that Lola has it herself. While most of the information I found stated that the vision impairment is only in the brain not in [...]
Lola Just as a Baby
By Meredith On August 29, 2011 · Leave a Comment · In Baby, Blog, Happiness, Infantile Spasms, Love, Parenting, West Syndrome
I thought it would be good to write about Lola just as a baby. Not as a baby with West Syndrome, not as a baby with cortical visual impairment, not as a baby with some delays. Just a baby. Food: Lola has turned into a ravenous beast when it comes to food. It is crazy [...]
When My “Aunt” is Here
By Meredith On August 27, 2011 · Leave a Comment · In Baby, Blog, Infantile Spasms, Motherhood, Parenting, West Syndrome
Every month is like deja vu. Right before I start my period (I’m not too prideful to say yes – I do in fact have a period) I start getting emotional and quite sad about Lola’s condition. The other 20 some days I am without it, I feel fine. I’m up for the challenge. I [...]
Two Thumbs Up from Melissa
By Meredith On August 26, 2011 · Leave a Comment · In Baby, Blog, Infantile Spasms, Milestones, Occupational Therapy, Parenting, Physical Therapy, West Syndrome
Lola’s occupational therapy session with Melissa went great today. Melissa was over the top impressed with what changes she saw in Lola’s vision. She commented that not only was Lola focusing better, she was focusing for much longer periods of time. She wasn’t as easily distracted and she seemed genuinely interested in what she was [...]
Clearly you can see that mangoes aren’t quite in season making them a little tart. Once Lola got past the first few bites, she loved them. OK, OK – she semi-loved them.
Follow Us
Visit our Tumblr Blog
Find Us on Facebook
Popular Discussion Topics
Help Promote Our Site
Raise Awareness About Lola’s Condition
Tags
baby birthday blog brain breastfeeding cortical visual impairment costa rica cute dad development family friends grandma happiness happy home hope husband indiana indianapolis Infantile Spasms labor lissencephaly lola love low vision michigan milestones mom mother motherhood neurologist Occupational Therapy pachygyria parenting partial lissencephaly physical therapy pregnancy seizures sleeping special needs swimming toddler vision west syndrome